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Things I Wish I'd Known: Cancer and Kids, by Deborah J. Cornwall
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Review
[This book] is made up of tips from experts and heartfelt stories gleaned from interviews with people who have experienced . . . the emotional highs and lows of helping children deal with cancer. . . . Reader friendly, concise, [and] filled with suggestions for resources available for further reference, reading, or study, [it] is an important resource tool for parents, pediatric professionals, family counselors, and social workers.   Midwest Book Review, Richard R. Blake, Senior ReviewerIn this book, [the author] skillfully informs readers of their options when it comes to kids who are facing cancer--whether the child is the patient or dealing with the effects of a family member who has been diagnosed. . . . "Keys of wisdom" [in each chapter] help unlock the puzzlement of the often "what now" of the cancer stages . . . . Firsthand accounts of individuals who have dealt with cancer . . . help readers feel more connected and less alone in their struggle. Compass Book Ratings (5-star Review) This book . . . is small in stature but big in information. [It] gives . . . guidance from experts and testimonies from real live people who have survived the trauma and heartbreak of helping a child deal with cancer. . . . [It] is reader-friendly and includes resources for future reference. It is an excellent resource in itself and I know parents, pediatric professionals, family counselors, and social workers will find it very helpful. . . . I highly recommend [it].Storywraps Book Review Blog [This book] provides resources to help manage [cancer's] daily impact [on children.] One . . . delight in [this book] is that it appears in a slim, pamphlet-like coverage of under sixty pages - which makes it more digestible for those in crisis with short attention spans.   California Bookwatch June 2015, James A. Cox, Editor-in-Chief         Any caregiver feeling overwhelmed by too much weighty information should look here for answers that are firmly grounded in real solutions.Donovan's Literary Services, July 2015Deborah's book (her second on caregiving) stands out by covering all the important issues and useful web resources surrounding childhood cancer caregiving in a compact, thorough, straight-forward way. Her gentle but tough messages will surely benefit many caregivers who find themselves in this challenging role.Karen Irwin, Project Coordinator, Cancer Knowledge Network (Produced by Multimed Inc., publishers of Current Oncology)
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From the Author
I had been a volunteer with the American Cancer Society for years before my own cancer diagnosis. My cancer was minimal and easily treated, unlike that of many others whom I've met along the way. Gradually my involvement with the Society migrated from board policy and fund-raising work to community-based work where contacts are very personal. In my own community and at the Society's Boston AstraZeneca Hope Lodge, I came in contact with people whose cancer survival and caregiving stories were much more trying than my own. Generous with their stories, they wanted to share the lessons they had learned (often the hard way). I realized I could use my proven interviewing and writing skills to help them do that. These ingredients hatched a dream that made Things I Wish I'd Known: Cancer Caregivers Speak Out and Things I Wish I'd Known: Cancer and Kids a reality.
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Product details
Paperback: 60 pages
Publisher: Bardolf & Company (January 5, 2015)
Language: English
ISBN-10: 1938842227
ISBN-13: 978-1938842221
Product Dimensions:
6 x 0.1 x 9 inches
Shipping Weight: 3.2 ounces (View shipping rates and policies)
Average Customer Review:
4.8 out of 5 stars
12 customer reviews
Amazon Best Sellers Rank:
#1,353,142 in Books (See Top 100 in Books)
Simply outstanding!! An excellent resource about cancer and kids that is well researched, organized and formatted. The quotes from those with actual experiences are incredibly helpful. Bravo!!
Deborah J. Cornwall takes a difficult and sensitive subject and conveys much needed information in a clear, concise, compassionate manner. This is a fine resource for helping families to cope. It is a great guide to help them live through this highly threatening disease, its treatment and the emotional impact on all members of the family. The author deals with complex issues, such as the initial diagnosis, the impact on one's personal life both within the family structure as well as with friends and school, the possibility of a failed outcome which means the possibility of death, the need for strong pain management and its unintended consequences, side effects. The story which stood out most for me was where the daughter-in-law cared for her husband's father at home while he was dying and how she coached her two children ages eight and five, through helping their grandfather die with dignity. A hospice worker helped the children create a memory box and special windmill. The children placed Grandpa's pillow case into a plastic bag to keep his memory alive and fight over who gets to sleep with Grandpa.The chapters are well organized and clearly written. The author breaks down the chapters as follows: Chapter One: Sharing the News, Chapter Two: Managing Cancer's Impact for Children, Chapter Three: When the Child is the Patient, Chapter Four: When Children Lose a Parent or Sibling to Cancer, and Chapter Five: Other Resources for Caregivers About Children. In the Preface, the author shares an acronym CHIN which stands for C- Control, H- Hope, I- Isolation, and N- Normalcy. The CHIN concepts are incorporated throughout the book to bring better understanding and management of dealing with the difficulties which arise with a cancer diagnosis.One helpful feature in this book is that the main concepts or principles are boldly printed at the beginning of each chapter. The author then describes each concept and provides real life examples of interviews with families and children, which are printed in italics making it easy to read and differentiate from the author's own writing. For example in Chapter One - Sharing the News, the author placed six principles in bold print: Be Proactive, Tap Expert's Best Guidance, Consult with the Professional Care Team, Meet the Child's Needs Not Your Own, Level With and Engage Older Children, and Be Direct. Each principle is given a thorough explanation in a clear precise manner. The author also lists resource books and websites which support the principles she discusses. This book does an excellent job in helping those affected to cope and manage the complicated issues, emotions and behaviors which may be experienced by the caregiver, communicator or the children involved. Received book as gift with option to review.Anyone interested in this subject is also recommended to view the documentary "A Lion in the House" which shows a six year journey of living with different cancer diagnoses by five extraordinary young people. The film looks at the children within the context of family, the hospital and their individualized treatment and how everyone affected by the disease copes. It shows meetings with doctors, coping with insurance coverage, nurses providing treatments, the difficulty of making decisions related to care and treatment. It is a heart wrenching film but highly inspiring and hopeful as well. Erika Borsos [pepper flower]
Cancer is a topic which, unfortunately, most of us can relate to in one form or another. Although there's quite a bit of literature out there describing direct experiences with this disease or offering help for the person suffering, there's little information available for the care-takers of such people, and even less for the children involved. I was glad to find a book solely dedicated to this often forgotten group.This is a help book, which delivers what it promises: assistance. Unlike many books, which try to give direct assistance through supportive writing, Ms. Cornwall helps guide parents/grandparents/and guardians to places, groups and communities where direct help is available. I found this extremely useful, since, so often, real help cannot be offered by general words. Experiences are personal. Problems are personal. And by directing individuals to real, existing support groups, Cornwall is helping exactly these issues to be addressed.Another thing I found exceptional in this book was the fact that it's based on openness, honesty and love. So often parents try to protect children from the harsh world, when this is not only unnecessary but often leads to more troubles than it solves. Children adapt and deal with these type of situations often better than adults. And I appreciated Cornwall's view on how to deal with the younger generation.Summed up, this is a great book, which all families touched by cancer should read. It doesn't try to sweeten the situation, but rather directs to real help and offers honest tips and opinions.I received a free copy in exchange for an honest review.
Cancer is hard to deal with for all involved - the person who has the cancer and his/her family. It is even harder to deal with when children are involved whether the child has cancer or a family member does. “Things I Wish I'd Known: Cancer and Kids†has useful advice for helping children cope when cancer strikes a family.Although “Things I Wish I'd Known: Cancer and Kids†is a slim book, it is packed with useful information. There are five chapters in the book: Sharing the News; Managing Cancer’s Impact for Children; When the Child is the Patient; When Children Lose a Parent or Sibling to Cancer; and Other Resources for Caregivers Concerned About Children. Each chapter gives advice, tidbits from victims of cancer or their family members, tips from experts, and a list of other resources. The book reaches out to cancer victims, their spouses, children, and other family members. One of the things I really like is that the book is aimed at children of all ages- from the very young to adult children watching a parent deal with cancer. While the book does deal with the loss of children from cancer, it is not sad. In fact I found uplifting at times.“Things I Wish I'd Known: Cancer and Kids†is a very useful tool in helping children and parents deal with cancer.I received this book for free in exchange for an honest review.
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